Tuesday, April 10, 2012

A Day with the Brains

by kristin

Last Friday we had a good "day with the brains" at Children's Hospital Colorado. My mom came over in the wee hours of the morning so we could get on the road as my MRI check-in was at 8:15am in Denver. MRIs are crazy things! I've never really had any medical things wrong/surgeries/etc, so the whole thing pretty much freaked me out. That...and the fact that I'm pregnant and concerned about possible effects on the baby long-term. I gave those concerns to the Lord and trusted that all of the Children's doctors know their stuff. They wanted to do a fetal MRI because they wanted to see the baby more clearly and make sure that they didn't see anything internally 'wrong', confirming that they wouldn't need to do any sort of emergency surgery right after birth.

You have to lay on your side when you're pregnant, because it's bad for you to lay on your back for so long. I was pretty much squished and then crammed up inside the machine on my side, with these huge brackets (no clue what they were called) embracing my belly on all sides. I made Jason sit in the room with me (yep...wanted him close-by)! It was loud...and hot...really hot! Baby boy kept moving around too, so picture 're-takes' were frequent. The machine gathered images for a little over an hour (yes, one hour without movement crammed into a machine!), and then I was done. I was famished, and couldn't get out of there fast enough to get food! Making a prego person wait to eat since 9pm the night before with an MRI that isn't finished until 11am is down right wrong. Fortunately, we had a few hours to ourselves after that. We went out to eat, did a little Easter basket shopping for the kids, and cruised the old neighborHOODs (Northern Aurora for those that didn't already know). That afternoon we headed back for the family meeting at Children's with the 'brains'.

Back at Children's, our escort met us at the door. We headed up to a conference room where we were greeted by eight doctors sitting around a table - all heads of departments, programs, and this and that. It was amazing to witness such an impressive group of medical professionals. They had already been together for a while going over our test results, previous ultrasounds, etc. This was our chance to hear their take on things, and ask whatever questions we had. To our absolute relief, it was confirmed that everything internal with our little guy is fine! Praise the Lord! Many of the things they presented were much of what we had already come to know. What they offered in addition, had a lot to do with exploring how to adapt this baby's environment down the road. This was very good to at least start to hear and think about on a deeper level. They also confirmed that we should be able to deliver in Colorado Springs instead of at Children's Hospital, which was also a blessing. We absolutely loved these doctors in the room, and were so encouraged by them. Their hearts seemed almost bigger than their brains. One of the most impressive statements by any of the doctors was, "It is not a disability for this child, it's the way he's born!" It was good to hear what we had already been telling ourselves, that this baby is incredibly perfect in every way. We are overjoyed at the opportunity to be his parents.

In the end, we're quite unsure about what our future looks like with Children's Hospital Colorado, but it's fairly certain that we'll cross paths with these doctors again sometime. They all said we could contact them whenever we needed and were glad to help in any way. Most importantly, they seemed to care deeply for this baby and his welfare. We loved and appreciated them so much and will most assuredly be in touch with them again. In the meantime, they are linking us up with a family who is in a similar situation as ours - a family that has lived with congenital amputation for quite some time - that can potentially help answer some of the day to day questions we have. We're very thankful for this opportunity and look forward to learning from them and their journey so far.



  

p.s. Jason will be riding in the Courage Classic this year to support The Children's Hospital...more to come.

6 comments:

  1. This comment has been removed by a blog administrator.

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  2. You guys are amazing. I'm honored to know you.

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  3. Great news!! So thankful u were encouraged by these "brainiacs"...and the "Big Brain" Himself. ;) We love ya'll and r continuing to hold u up in our conversations with Papa as u walk this journey!

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  4. I second the praises of Children's. They were wonderful to us when we needed them. They DO stand by "call us anytime". I'm so excited for you to hold and gaze upon and kiss this amazing miracle! Oh your house is going to be SOOOO F*U*L*L!!!!! :*)

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  5. Love you all and praying for this baby on the way!

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  6. I honestly think that in the future more people will be able to readily comment like the doctor you mention -- there's no normal, just what our individual experiences are. I often think of how far we've come in respecting people with varying issues, be it physical, mental, emotional, and I only hope we continue to understand the miraculous gifts that each of us bring to this world . . . exactly as we are. And that this kind of progress brings more acceptance and a wider way of relating to one another, providing the necessary supports so each person has as much freedom as possible to live, move, and breath as they choose. love you. gfaith

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